Transparency in Health and Health Care in the United States: Law and Ethics

Description

Transparency is a concept that is becoming increasingly lauded as a solution to a host of problems in the American health care system. Transparency initiatives show great promise, including empowering patients and other stakeholders to make more efficient decisions, improve resource allocation, and better regulate the health care industry. Nevertheless, transparency is not a cure-all for the problems facing the modern health care system. The authors of this volume present a nuanced view of transparency, exploring ways in which transparency has succeeded and ways in which transparency initiatives have room for improvement. Working at the intersection of law, medicine, ethics, and business, the book goes beyond the buzzwords to the heart of transparency's transformative potential, while interrogating its obstacles and downsides. It should be read by anyone looking for a better understanding of transparency in the health care context.

Holly Fernandez Lynch Is the John Russell Dickson, MD Presidential Assistant Professor of Medical Ethics at the University of Pennsylvania's Perelman School of Medicine. She focuses her scholarly research on issues at the intersection of law, bioethics, and health policy, in particular the ethics and regulation of research with human subjects and conflicts of conscience in health care. I. Glenn Cohen is the James A. Attwood and Leslie Williams Professor of Law and Faculty Director of Petrie-Flom Center for Health Law, Biotechnology & Bioethics at Harvard Law School. He is one of the world's leading experts on the intersection of bioethics and the law, as well as health law. He is the author of more than 110 articles in venues like the New England Journal of Medicine, JAMA, Nature, and the Harvard Law Review, and the author, editor, or co-editor of twelve books. Carmel Shachar is the Executive Director of the Petrie-Flom Center for Health Law Policy, Biotechnology, and Bioethics at Harvard Law School. Carmel's scholarship focuses on law and health policy, in particular the regulation of access to care for vulnerable individuals, health care anti-discrimination law and policy, and the use of all-payer claims databases in health care research. Carmel is also a Lecturer at Law on Harvard Law School, where she co-teaches a course on Health Care Rights in the Twenty-First Century. Barbara J. Evans is the Mary Ann and Lawrence E. Faust Professor of Law, Professor of Electrical and Computer Engineering, and Director of the Center for Biotechnology and Law at the University of Houston. Her research interests include data privacy and access, regulation of emerging biotechnologies and machine-learning software, and genomic civil rights.